Who We Are!

At the Caring Voice Coalition we understand that the diagnosis of a chronic disease often results in situations and emotions that deeply impact a person’s life. Visits to the doctor, complex treatment regimens and periodic hospitalizations make daily life harder to manage. Financial burdens caused by medical appointments, insurance costs and therapy co-payments may strain already limited financial resources. And feelings of depression, fear, and anxiety may make it hard to manage day-to-day needs, to plan and to hope for the future. To a person living with a life-threatening chronic disease, these challenges are often all too real.

Caring Voice Coalition seeks to empower our patients to meet these challenges through comprehensive, effective programs and a knowledgeable, caring staff. We value our reputation as a responsible, responsive organization with a unique, holistic approach to improving the lives of our patients.



Our current programs include:

• Financial Assistance Program: Providing financial support to help patients keep and use health insurance coverage.



• Insurance Education and Counseling: Helping patients get the most from their healthcare coverage.



• Patient Support Program: Linking patients and caregivers to needed services and resources.

• Alpha-1 Antitrypsin Deficiency (Alpha-1)
• Chronic Granulomatous Disease (CGD)
• Huntington's Disease (HD)
• Idiopathic Pulmonary Fibrosis (IPF)
• Pulmonary Arterial Hypertension (PAH)