It was one of the toughest decisions to discontinue the financial aid for chronic diseases program. We arrived at the decision after a lot of deliberation. However, we continue to receive emails enquiring about when the program will be restarted, or if we can point someone in need towards a viable alternative program.
That’s when we decided to create a helpful resources page that will help our readers find some of the popular funding programs for diseases as of 2021. However, please note that we are not affiliated with any of the organizations below. As always do your own due diligence before you engage with any organization that promises financial aid.
Take all necessary precautions that you would when you deal with a company that you come across on the internet.
Why did we discontinue our financial aid program?
There are numerous reasons why we had to discontinue offering financial aid for diseases. Firstly, we have been unable to find a viable funding source. Many of the charitable organizations that offered donations had to cease operations during the pandemic.
Since we do not accept financial aid from any health/nutrition company, we were finding it tough to keep the program functional. We did voluntarily source funding for some patients who were in dire need, for a while. But after a time, our own priorities caught up and we just couldn’t continue to offer it in a sustainable way.
Will the financial aid program be restored?
We don’t see the program restarting in the immediate future. To know more about this, please read our latest update on financial assistance.
What are the alternative ways in which someone can acquire funding?
There are many independent organizations that offer funding. However, patients and caregivers often find it tough to narrow down on the right one. Some organizations only offer funding for specific conditions, while others are rejected. We have seen situations where patients had to run from pillar to post trying to find the right organization.
Time is of critical importance when you are trying to look for financial aid for treatment and therapies. Hence, we have tried to create an updated and elaborate guide that is segregated on the basis of diseases. That’s the easiest way to find a funding source that works for your situation.
Will one of these organizations be able to offer financial aid?
That depends on a multitude of factors. Like you, there are millions of others who are looking for financial aid. But aid is in fact limited. Most of these programs accept applications for a limited time period and there are limited spots too, which get filled a lot sooner than you could imagine.
Hence, the best way to ensure that you can acquire funding is to stay updated about when the applications open. Each organization has a mailing list that you can subscribe to. This should keep you updated about the application opening date, application status and the number of spots.
We do not guarantee that even after attempting with more than one organization, you may be able to secure funding. That said, the best you can do is try.
On that note, here’s the updated list of helpful resources that we have curated for you.
Click on a disease name to view a list of related resources. To save time when contacting the resources below, have ready a list of all your diagnoses and the names of any medications for which you are seeking assistance.
BILE ACID DEFICIENCY
National Organization for Rare Disorders
(877) 291-7805
COMPLEX PARTIAL SEIZURES
Epilepsy Foundation – Travel assistance and respite care only.
(800) 332-1000 – https://www.epilepsy.com/living-epilepsy/247-helpline/patient-assistance
Josh Provides Epilepsy Assistance Foundation
(800) 706-2740 – http://www.joshprovides.org/
Chelsea Hutchison Foundation
TEL: 303-250-7739
FAX: None
CUTANEOUS LYMPHOMA
Patient Access Network Foundation
(866) 316-7263
www.panfoundation.org
HealthWell Foundation
(800) 675-8416
www.healthwellfoundation.org
Leukemia & Lymphoma Society – LLS Co-Pay Assistance Program
(877) 557-2672
http://www.lls.org/support/financial-support
T-Cell Leukemia Lymphoma Foundation
https://www.tcllfoundation.org/resources-and-support/patient-assistance
Colburn-Keenan Foundation, Inc.
(800) 966-2431
http://www.colkeen.org/
GAUCHER DISEASE
National Gaucher Foundation – CARE Program
(866) 346-8176
Plative
1-800-232-5108
https://www.plative.com/client/success-nonprofit-ngf/
Good Days
(877) 968- 7233
Huntington’s Disease Assistance Fund
Fund available only to residents of Florida.
(561) 921-5746
http://hdaf.org/about/
Scottish Huntington’s Association
https://hdscotland.org/new-financial-advice-helps-huntingtons-disease-families/
INFANTINE SPASMS
Child Neurology Foundation
Assistance Fund, Inc. – Infantile Spasms Copay Assistance Program
TEL: 844-762-9237
Alternate Phone:855-845-3663
FAX: 833-865-3757
Email: patientadvocates@tafcares.org
LENNOX GASTAUT SYNDROME
Josh Provides Epilepsy Assistance Foundation
(800) 706-2740
www.joshprovides.org
The Assistance Fund
(855) 359-0339
https://tafcares.org/
Alexion Charitable Foundation
https://alexion.com/our-commitment/alexion-charitable-foundation
Eisai Assistance Program
Phone: 1-855-EISAI-4-U (1-855-347-2448)
Fax: 1-800-226-2059
Monday – Friday, 9 am to 5 pm ET
Navigate Life Texas
718-374-3800
Patient Services INC
Phone: 1-800-366-7741
https://www.patientservicesinc.org/patients/
Cerner Charitable Foundation
(816) 201-1569
ORTHOSTATIC HYPOTENSION
https://www.northera.com/patient-support/paying-for-northera
PULMONARY HYPERTENSION
Patient Advocate Foundation
(866) 512-3861
www.copays.org
PHA
https://phassociation.org/patients/insurance-and-treatment-access/financialassist/
Hemophilia Federation of America – Helping Hands Program
(800) 230-9797
http://www.hemophiliafed.org/programs/helping-hands/
FUND FINDER
PAN Fund Finder
You might discover that a lot of these financial aid programs are not accepting applications at the moment. That’s why this fund finder from PAN Foundation is very useful. It shows you only the programs that are active at the moment.
https://fundfinder.panfoundation.org/
You will have to register with a valid email ID to get access to the information though.
Types of Assistance for patients & caregivers
Not all organizations and programs listed here will offer financial aid mind you. A lot of them will offer other types of support, which is not necessarily bad.
For instance, the Corporate Angel Network only offers Air Travel Assistance for Cancer patients. Similarly, Imerman Angels is an organization that connects you with a donor, that it calls a ‘Mentor Angel’.
Some organizations like www.patientadvocate.org, offer a wide range of services such as direct Financial assistance, Co-pay assistance, Medical debt crisis assistance & Medication assistance.
We generally do not list Industry-Sponsored Assistance Programs because of our terms and conditions. But we make an exception for this page because this might help someone in a desperate situation.
Acrotech Biopharma offers a wide range of assistance programs for patients, which can be found at https://acrotechpatientaccess.com
Versatem Oncology also offers a wide range of assistance programs that include financial assistance and patient assistance. You can find more information over here – www.verastem.com/patients/verastemcares